Hey, guys,
I want to step slightly away from the humorous side of myself for a moment and fill you all in on the month of May since this could very well affect our coming to NJMP or, at the very least, what we, as a family, will be able to do once there. Firstly, up front, yes, we are still planning to attend NJMP and are very much looking forward to meeting everyone and having a blast while there. During the month of May, we spent 17 days in the hospital with our eight year old daughter. After an MRI, a bone scan, an echo cardiogram, multiple x-rays, an interventional radiology (IR) bone biopsy, an invasive general surgery bone biopsy, an assortment of blown IV’s, multiple blood draws (sticks, as she calls them), lots of staff head-scratching while trying to nail down exactly what she had, a discharge, a readmission less than 48-hours later, a med change due to a drug-induced fever, unbearable pain, lots of sleepless nights and a truck load of hospital food, she is now home with a peripherally inserted central catheter (picc line) and is receiving antibiotics once a day via Mom and Dad for what the doctors believe is osteomyelitis (a bone infection). As anyone can guess, there is much more to this story, but that’s the short version. ‘HOPEFULLY’ the picc line will be a four-to-six week process, and, if weekly checkups and blood draws continue to trend in the right direction as they are now doing, we will arrive at NJMP PICC LINE FREE!!! However, the IV antibiotic she is currently on (daptomycin, one of the strongest on the market) does have a couple of unavoidable side affects; muscle deterioration and the fact that the sun and antibiotics do not mix well will limit her time trackside as well as her activities for the day. Anyway, that’s where we are and what we are up against. Please keep us in your thoughts and prayers and here’s to seeing all of you on the 4th . . . . . :cheers: